Innovating Rare Disease Treatment: Integrating Digital Tools from Day One
How pharma, advocacy groups, and digital platforms are revolutionizing patient support
In this webinar, UCB Pharma and the Les Turner ALS Foundation joined Medisafe discuss the integration of digital tools in innovating rare disease treatment. Below are the highlights and the full webinar:
- The integration of digital tools in rare disease treatment can significantly streamline diagnosis and therapy initiation, offering a more personalized approach to patient care.
- Multidisciplinary care is vital for ALS patients, involving various specialists like neurologists, pulmonologists, and occupational therapists to enhance quality of life and extend survival.
- Patient engagement and the use of hyper-personalized digital tools can improve adherence, engagement, and ultimately patient outcomes in rare diseases.